WHAT IS HEMOPHILIA AND VON WILLEBRAND DISEASE?
Hemophilia and von Willebrand Disease are bleeding disorders affecting hundreds of individuals in the State of Maryland. There are approximately 300 individuals who have Hemophilia A and B combined, and 1% of the population lives with vWD; or around 56,000 individuals in Maryland. They are chronic, lifelong, and incurable diseases that prevent the blood from clotting properly, so a person who has hemophilia bleeds more and longer than someone without hemophilia does. It's a genetic disorder, which means it's the result of a change in genes that was either inherited (passed on from parent to child) or occurrend during development in the womb. Hemophilia affects mostly boys - about 1 in every 5,000-10,000 is born with hemophilia. Girls are more rarely affected. vWD affects boys and girls equally.
History of Hemophilia Foundation of Maryland
The Hemophilia Foundation of Maryland evolved in the early 1950's from a group of concerned moms whose sons were affected with Hemophilia. They were soon joined by men from the community who were also affected. These early chapter families were brought together by the social worker at St. Agnes Hospital, where most were treated. As the HIV crisis unfolded, the chapter formed. Some of the founding members of this organization continue to guide HFM today.