"Making Life More Manageable for People with Bleeding Disorders"
The Hemophilia Foundation of Maryland (HFM) is a Nonprofit Organization, which devotes its efforts to improving the quality of life for persons affected with bleeding disorders and their complications. This mission is accomplished through outreach development, educational programs, informational literature, support services and patient referrals. HFM is a proud member of the Hemophilia Federation of America.
HFM Community News
Be sure to check this section frequently as we bring you the latest and greatest happenings from within the Maryland bleeding disorder community.
Have some news you want to share? Please email HFM at
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MEET THE HFM EXECUTIVE BOARD
In February, 2017, Hemophilia Foundation of Maryland opened our executive board positions up for election in compliance with our organization bylaws. Slots are opened when someone has vacated their position or a board members term has expired.
HFM staff is happy to introduce our new Executive Board. We are excited for the community to get to know these individuals better, and we are thankful for their support of HFM's growth!
Served on the HFM Board of Directors for the past 5 years. Father of a son with Hemophilia A. William is employed by the Department of Education and is a retired Naval Officer. William is and always has been willing to advocate at the state and federal level for hemophilia families. Might I add, he's also a pretty awesome Race to Stop the Bleeding Master of Ceremonies!
Served on the HFM Board of Directors for the past 2 years. Father of a son with Hemophilia A. Edgar is a strong leader who always puts the best interests of HFM first. Edgar, his beautiful wife, Regina and their children are always willing to lend a helping hand when needed.
Annette has served on the HFM Board for as long as anyone can remember. She is one of HFM's founding members and is very well respected within the bleeding disorder community. Annette is a hemophilia carrier and has an adult son with severe hemophilia. Since her son's diagnosis, she has been a staunch advocate for our community. She is fair, knowledgable and always willing to lend a hand.
Shanika is married to Tavon Jordan, Jr. and is the mother of four (3 girls and 1 boy). Her son, Roland, has severe hemophilia B. No-one else in Shanika's family has hemophila, so Roland's initial diagnosis was quite a surprise. But she was a quick learner, and 18 years later, she's now sending her boy off to college! Shanika is employed as an Accreditation Business Service Specialist with the Better Business Bureau. She has been an active member of the Hemophilia Foundation of Maryland for more than 15 years and has proudly served on the HFM Board of Directors for the last two years.
Did you know HFM Membership is FREE?
There is no cost to become an HFM member, but membership is required to receive notification and attend upcoming events and programs. Be sure to complete our online membership form below TODAY!
Emergency Room (ER) Form for Bleeding Disorders
An Emergency Information Form for Children with Special Health Needs is available to help parents explain their child's complicated medical history when they must visit the emergency room. The form was created by the American College of Emergency Physicians and the American Academy of Pediatrics. The two organizations say that physicians, parents, EMS professionals and nurses will be able to use the form as a tool to transfer critical information.
The child's physician or hemophilia treatment center staff fill out the medical information ahead of time, so the parent can hand ER staff the form when needed. Parents are also encouraged to give copies of the form to all of their child's caregivers.
For children registered with the MedicAlert Foundation, the organization can keep the form on file so healthcare professional can access it 24 hours a day.
Important Dental Information To Take With You to Your Next Dental Visit
With so much on our minds, it is quite easy to forget some information that may be very important to mention at your or your child's next dental visit. Baxter Healthcare created the linked form to make dental visits much easier!