"Making Life More Manageable for People with Bleeding Disorders"
The Hemophilia Foundation of Maryland (HFM) is a Nonprofit Organization, which devotes its efforts to improving the quality of life for persons affected with bleeding disorders and their complications. This mission is accomplished through outreach development, educational programs, informational literature, support services and patient referrals. HFM is a proud member of the Hemophilia Federation of America and the National Hemophilia Foundation.
HFM Community News
Be sure to check this section frequently as we bring you the latest and greatest happenings from within the Maryland bleeding disorder community. Have some news you want to share? Please email HFM at
Miller8043@comcast.net. Want to subscribe to HFM's online newsletters and email list?
Please clicik on the subscribe button on the Newsletter page.
Advocacy UpdateHouse Bill 0761 was voted out of subcommittee yesterday (March 13th). It is expected this bill will be heading to the floor for vote next week. Senate Bill 874 is still in the finance committee and we need your help to get it to the floor! It appears the insurance carriers are upset about an unfavorable decision regarding a Step Therapy bill and may now take the position to oppose the Speciality Tier Bill. This may hold the bill in the Finance Committee and if this happens, then the entire bill fails! Please continue to send Emails of Support by Clicking Here! Time is of the essence!!
Thank you to our Generous Advocacy Sponsors: Pfizer, Novo Nordisk and Baxter
Special Thank you to Delegate Peter Hammen, Delegate Shane Pendergrass and Senator Klausmeier for their continued support of this very important bill!
HFM Advocacy Days were a huge success! Thank you to all who attended. Rather than me try to explain the success, read fellow board member, Vaughn Ripley's story - he says it much better than I ever could!!
"Our Maryland Advocacy Days meetings today went incredibly well! I passed out five information packets, three copies of my autobiography, and met Senator Young and Delegate Hough. Both of them said, "If Delegate Hammen introduced this bill, then it will pass." They both also said they will fully support the bill and vote yes!!!
Kristine, Trinity, Xander, and I started our day by meeting Senator Ronald Young. Firstly, I honestly was expecting to only meet aides... And, it started out looking like we would. The Senator's aides greeted us, and explained that he was about to leave for the Caucus assembly and he would not have time to see us. However, he overheard us chatting and came out with a smile on his face. Senator Young was very polite and personable. He listened to our story intently and when we finished he said, "I will absolutely vote yes on this bill." YAY!
Next, we dropped off three folders for delegates that we didn't have appointments with. One of the aides worked with a congressman (I think from Minnesota or Michigan) who had three hemophiliac boys. She was very helpful and said she would push our point with the delegate.
Delegate Hough was truly awesome and kind as he not only met with Kristine and me (and our kids), but he took time out of his busy schedule to walk us over to the State House and give us a guided tour! He actually walked us through some of the history of the building and told us stories about Washington, Hamilton, and Franklin while walking us into rooms that had "no access" signs on the doors. We literally got the behind the scenes tour.
He took us into the original House of Delegates room; which was recently renovated. He showed us the resignation letter of George Washington with a twinkle in his eye. It was incredible awesome and very positive!
Thank you to everyone for a fantastic two days in Annapolis!
REGISTRATION NOW OPEN
Save the Date: July 19, 2014
Registration is Openfor the Hemophilia Foundation of Maryland Annual 5K Race to Stop the Bleeding. Please click here to register today. Can't make it to the event, please consider making a donation by clicking here
Thank you to our event sponsors: CSL Behring, Novo Nordisk, Baxter, Bio, Rx,
Biogen Idec Hemophilia, MedPro, Rx & Factor Support Network
View Our 2014 Annual Meeting Slideshow Below!
HFM BOARD RETREAT
HFM's Board Retreat took place on November 23, 2013 at the Sheraton Four Points in Linthicum, Maryland. Guest presenters included: Dr. Casella & Dr. Streiff from the Johns Hopkins HTC, Paul Dempsey from Novo Nordisk and Janel Johnson Momanyi from HFA. Thank you to all who attended! A great deal of work was completed at this year's retreat as we gear up to finish a great 2013 fiscal year and plan for even more greatness in 2014!
Did you know HFM Membership is FREE?
There is no cost to become an HFM member, but membership is required to receive notification and attend upcoming events and programs. Be sure to complete our online membership form below TODAY!
HFM Awards Educational Scholarships to Aspiring
Students for the 2013-2014 School Year!
Education is Power and HFM proudly tries to support all who are interested in continuing their education. CONGRATULATIONS to the following individuals who were awarded scholarships for the 2013-2014 school year.
Students with a Bleeding Disorder:
- Roshan Dutta
- Colin Wick
- Matthew Gates
- Brooks Hoffman
- Alex Bennett
- Cory Flens
- Kyle Flens
- Kristin Gates
- Kaitlyn Marlatt
- Janae Alston
- William Hoffman
Emergency Room (ER) Form for Bleeding Disorders
An Emergency Information Form for Children with Special Health Needs is available to help parents explain their child's complicated medical history when they must visit the emergency room. The form was created by the American College of Emergency Physicians and the American Academy of Pediatrics. The two organizations say that physicians, parents, EMS professionals and nurses will be able to use the form as a tool to transfer critical information.
The child's physician or hemophilia treatment center staff fill out the medical information ahead of time, so the parent can hand ER staff the form when needed. Parents are also encouraged to give copies of the form to all of their child's caregivers.
For children registered with the MedicAlert Foundation, the organization can keep the form on file so healthcare professional can access it 24 hours a day.
Important Dental Information To Take With You to Your Next Dental Visit
With so much on our minds, it is quite easy to forget some information that may be very important to mention at your or your child's next dental visit. Baxter Healthcare created the linked form to make dental visits much easier!