Hemophilia Foundation of Maryland
"Making Life More Manageable for People with Bleeding Disorders" 

"Making Life More Manageable for People with Bleeding Disorders"

 "Making Life More Manageable for People with Bleeding Disorders"

The Hemophilia Foundation of Maryland (HFM) is a Nonprofit Organization, which devotes its efforts to improving the quality of life for persons affected with bleeding disorders and their complications. This mission is accomplished through outreach development, educational programs, informational literature, support services and patient referrals.  HFM is a proud member of the Hemophilia Federation of America.

Former "Hole in the Wall Gang" Campers Reunite at National Hemophilia Foundation Annual Conference.
Pictured above:  Matthew, John Taylor, Matther, Harvey Sr., (camp chaperone), Spencer, Greg, Nick and Scott

HFM Community News

Be sure to check this section frequently as we bring you the latest and greatest happenings from within the Maryland bleeding disorder community.  

Have some news you want to share?  Please email HFM at 

Miller8043@comcast.net.  Want to subscribe to HFM's online newsletters and email list? 

Please click on the subscribe button on the Newsletter page.  


An Important Message from Johns Hopkins HTC Nurse Coordinator, Trish Underland

Dear HFM and all of the members of the bleeding disorders community in Maryland,

I wanted to let everyone know that I have decided to leave my position as the HTC coordinator at Hopkins and have accepted a position with Baxalta/Shire as a senior clinical specialist. This decision was not an easy one and I know I will miss my role as nurse coordinator very much. This community means so much to me, I have met so very many wonderful, kind, strong and courageous people. The experiences I have gained while in this role have been an invaluable part of my nursing career. You have all taught me so much and I have witnessed firsthand what happens when families, friends and community come together for a common cause! It has truly been a pleasure to serve as your HTC nurse and I thank you so much for your support and friendship over these past 14 years.

Kim Drucis is the new nurse practitioner who will be taking my place effective August 15. Kim has been at Hopkins for many years, most recently as the pediatric bone marrow coordinator. Kim is a compassionate, bright and hardworking nurse practitioner. She has been working with me for the past 3 weeks and I am confident that the transition will be a very smooth one. You will soon learn what a wonderful replacement for me Kim will be!

The good news for me is that this is not a goodbye; simply a new role with a new opportunity to engage and continue my involvement with such a wonderful, strong and dedicated community.

Fondly,

Trish Underland

Hemophilia Foundation of Maryland wishes Trish the very best as she transitions into her new position with Baxalta/Shire. While we are so very sad to say goodbye to Trish as our HTC Nurse Coordinator, we are very proud of her transition into the next phase of her career. Trish, you are a great friend, a phenomenal nurse and an integral part of the HFM family. I know this transition will bring along change, which admittedly, I'm not very good at. But I also know that without question, your dedication to this community will continue. So, this is not GOODBYE - this is simply a SEE YOU LATER as a Baxalta/Shire Clinical Specialist. We love you Trish Underland, and we wish you the very best in this transition. 

Should the HFM community have any questions regarding this transition, please do not hestiate to contact the HFM office or Trish Underland directly. 

Best, 

Emma Miller 
Executive Director 
Hemophilia Foundation of MD

HFM thanks the following 2016

Summer Camp sponsors for their support!

Main Sponsor:  

Pfizer

Supporting Sponsors:  

Cottrill's Pharmacy

Diplomat

Octapharma

CSL Behring

HFM Teen Sailing Excursion was a Huge Success!

Thank you to all who attended the HFM Teen Sailing Excursion at the Baltimore Sailing Center.  Also, thank you to our event and educational presentation sponsor, Octapharma and Susan Shomaker.  Last but certainly not least, a huge thank you to HFM Teen Leader and event organizer, Tony Tezak!  Teens learned the basics of sailing and working together as a team to keep their sail in the wind - all the while benefiting from the experience of friendship, team building, problem solving and FUN!   Stay tuned for future Teen Group Events.  Do you have a suggestion for a future teen outing?  If so, please email HFM at Miller8043@comcast.net!

Congratulations to Johns Hopkins Hemophilia Treatment Center Nurse

Hemophilia Foundation of Maryland would like to congratulate our Hemophilia Treatment Center Nurse Coordinator, Trish Patricia Underland for being recognized as one of Baltimore's TOP Nurses by Baltimore Magazine! While we are not surprised - as you all know how much HFM appreciates Trish - we are very, very proud of her. 

For those of you who don't know - Trish is not only an exceptional HTC nurse, she is also a dedicated HFM volunteer. She volunteers at hemophilia Summer Camp each year for the week - unpaid! She actually uses her own leave to do this. She volunteers as our infant caretaker and childcare coordinator at the HFM family weekend - again unpaid! She also volunteers at the infusion workshop, completes all of the camp medical forms and chaperones our kids to and from camp! She devote hours upon hours of her personal time to HFM patients by making herself available at all hours of the day and night. She is kind, caring, humble, loyal, intelligent, giving and simply a fantastic person. Trish - WE ARE SO VERY, VERY PROUD OF YOU and you are so very deserving of this award! 

Visit http://www.baltimoremagazine.net/top-nurses-2016 to view Trish's accolade!

Did you know HFM Membership is FREE?  

There is no cost to become an HFM member, but membership is required to receive notification and attend upcoming events and programs.  Be sure to complete our online membership form below TODAY!

Congratulations HFM 2015-2016 Scholarship Recipients!


HFM would like to CONGRATULATE the following HFM Milton Doug Hiteshew Memorial Scholarship Winners! HFM commends your educational and service accomplishments, and we are proud to support your higher education goals! 


Scholarships awarded to HFM community members living with a bleeding disorder: 


Roshan Dutta - $2,500.00 - Dartmouth College 

Matthew Gates - $2,500.00 - Hampton University 

Kurt Vogelberger - $2,500.00 - Towson University 

Brooks Hoffman - $2,500.00 - Gulf Coast State College 


Sibling Scholarships 

Adara Gray - $2,000.00 - Hood College 

Kaitlin Gates - $2,000.00 - Hampton University 


Parent Scholarships: 

William Hoffman - $500.00 UDC David A. Clarke School of Law 


Emergency Room (ER) Form for Bleeding Disorders

An Emergency Information Form for Children with Special Health Needs is available to help parents explain their child's complicated medical history when they must visit the emergency room.  The form was created by the American College of Emergency Physicians and the American Academy of Pediatrics.  The two organizations say that physicians, parents, EMS professionals and nurses will be able to use the form as a tool to transfer critical information.  


The child's physician or hemophilia treatment center staff fill out the medical information ahead of time, so the parent can hand ER staff the form when needed.  Parents are also encouraged to give copies of the form to all of their child's caregivers.  


For children registered with the MedicAlert Foundation, the organization can keep the form on file so healthcare professional can access it 24 hours a day.  


 

Important Dental Information To Take With You to Your Next Dental Visit

With so much on our minds, it is quite easy to forget some information that may be very important to mention at your or your child's next dental visit.  Baxter Healthcare created the linked form to make dental visits much easier!